Dementia Advocacy

The Beth Johnson Foundation is a pioneer of advocacy programmes, having initiated citizen advocacy for the first time in 1989, and dementia advocacy in 1998. Our dementia advocacy programme has developed over the years to support people at a most vulnerable time in their lives when they have been diagnosed with dementia.

The Dementia Advocacy Project currently covers Stoke and North Staffs offering a free service to people aged 50 plus with a diagnosis of dementia or awaiting their diagnosis who have an issue. Issues are varied and often complex, example of issues include all types of abuse, accommodation, family dynamics, challenging providers and may more.

To find an advocate contact:

Betty Machin (Manager) at: betty.machin@bjf.org.uk, or Laura Higgins (Project Co-ordinator Stoke on Trent) laura.higgins@bjf.org.uk


Dementia Advocacy Blog Posts:
https://dementiaadvocacy.wordpress.com
 


Daps & Dandies Project
The Dementia Advocacy Peer Support Group (DAPS) are all living with a diagnosis of dementia - this group is facilitated by advocacy staff at the Beth Johnson Foundation. Dandelion aims to create welcoming spaces for local younger (18+) people to share knowledge, exercise their creativity and build a community together.
Read more here


Latest Report:
Dementia Enquirers Report


Beth Johnson Foundation Peer Support Group
Members of Beth Johnson Foundation Peer Support Group with first year Keele medical students.  Medical students hearing from people living with dementia on how to live well dementia.
If you have dementia and are interested in joining the peer support group Contact Betty.machin@bjf.org.uk  Mobile 07961752111

Members of Beth Johnson Foundation Peer support group with first year Keele medical students. Medical students hearing from people living with dementia how to live well dementia. If you have dementia and are interested in joining the peer support group. Contact Betty.machin@bjf.org.uk Mobile 07961752111



Dementia Research Study

Enabling Research in Care Homes (ENRICH)

The ENRICH initiative and Research Ready Care Home Network aim to improve the lives and health of older people living in care homes and improve the consistency of support for research outside the NHS.
Improving the lives and health of older people living in care homes is a major UK government priority. This objective was listed in the Prime Minister's Challenge on Dementia 2020, for more research to be conducted in, and disseminated through, care homes. The Enabling Research in Care Homes (ENRICH) initiative aims to help make this happen, and to improve the consistency of support for research outside the NHS. The majority of care homes have since signed up to the NIHR ENRICH 'Research Ready Care Home Network'.
The network brings together care home staff, residents and researchers to facilitate the design and delivery of research, with the aim of improving quality of life, treatments and care for all residents. The network provides more opportunities for care homes and residents to become involved in local and national research studies. It also endeavours to help researchers understand the challenges and solutions around increasing research activity in care homes and identify better ways of working with existing care home systems to ease study delivery.
Getting involved can potentially lead to benefits for residents, staff and care homes. For example it can:

  • provide stimulation as residents take part in new activities or have someone new to talk to
  • give back control to residents, allowing them to feel like they are contributing to the future
  • stimulate residents to take an increased interest in their own health and wellbeing
  • lead to professional development opportunities for staff
  • enable care home staff to learn of new developments, which can contribute to the home’s business and marketing plans
  • encourage researchers and funders to address issues that are of interest to care homes such as symptom management, or end-of-life care
  • improve contact between care homes and other local health and care services
  • provide an effective voice for residents, families and staff whose views may have been previously unheard.

Find out more or join the conversation:
  • www.enrich.nihr.ac.uk
  • NB. The BJF have had no involvement in developing this research, and are merely acting as a conduit regarding recruitment for those interested in participating.
     

FILMS: 
BJF Peer Support Group -  Living Well with Dementia 2020

BJF Peer Support Group - A morning at the theatre 2020

Dementia Friends BSL Session
Deaflinks 2017


HELPFUL LINKS:
10 Top Tips when choosing a care home 


Related Documents

Beth Johnson Foundation Blog



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